shan. shanti. shankie. shane. call me what you will.
she/her. 20. lesbian. aromantic. disabled. spoonie. vintage. femme. kinky. queer. fencer. guitarist. 🦓🥄♾️🐝. 🏴🚩🌱. straightedge: ✖️✖️✖️. PLUR.
hypermobile ehlers danlos syndrome. POTS. chronic pain. chronic fatigue. AuDHD. endless comorbids. i'm a delicate little flower. if you need me, i'm probably napping.
punk, post punk, industrial,
hardcore, queercore, emo.
☀️ aries ☀️
🌙 pisces 🌙
🌟 taurus 🌟
♡
ways to send me money! you can help me afford medical supplies, copays, food, and supplies for all my creative endeavors :)
profiles
dm if u want me to link your stuff here <3
This May, I'm participating in EDS & HSD Awareness Month by fundraising for the Ehlers-Danlos Society! 🦓
The Society funds research and education on my disability as well as providing advocacy and community support to people living with Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders.
Here is the Ehlers-Danlos Society's mission statement from their website:
The Ehlers-Danlos Society is a global community of individuals, caregivers, healthcare professionals, and supporters, dedicated to saving and improving the lives of those affected by the Ehlers-Danlos syndromes (EDS), hypermobility spectrum disorders (HSD), and related conditions.We are proudly working to provide global learning conferences, collaborative research and education initiatives, awareness campaigns, advocacy, community-building, and care for the EDS and HSD population: Giving HOPE to all those whose lives are affected by EDS and HSD.